stusi
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posted on June 16, 2002 01:42:38 PM new
krs- you are quite adept at "clouding"- a technique used to avert the subject at hand to another to avoid the issues actually being discussed. It is used when one has been cornered into the trap their deceit or ignorance inadvertently sets for themselves. For the record I have nothing to do with any pharmaceutical company. I recently agreed here that they markup their products shamelessly. I have no hidden agenda, unlike drug addicts who like to induce others into their dark world of denial and complicity. I felt I had something to share despite its apparent unpopularity. BTW- my "presentations" in THIS field are usually quite accurate unlike those whose kneejerk reactions are to coddle and give the PC advice.
nycyn- once again your uncontrollable desire to see your words in print despite any significance has gotten the better of you. You are showing all here your immaturity and insecurity. Get over it- I am not here to be your enemy.
[ edited by stusi on Jun 16, 2002 01:46 PM ]
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nycyn
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posted on June 16, 2002 01:56:12 PM new
Stusi: I mean I really, really for sorry for you. Nothing else to do because it is pointless to try.
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chococake
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posted on June 16, 2002 02:11:37 PM new
akt I'm sorry you're suffering such pain at the moment. Please do find a doctor that will give you pain medication for some relief.
Other medications can work for some people, but not others. I tried Neurontin and had a side effect of unbearable pain and weakness in my legs so that I could barely walk. Yet, I know someone it has done wonders for.
Right now I'm in the same place you are. Usually, the pain is always there, but manageable. I don't know what triggered this set back, but once this cycle starts I do go to the chiropractor, have deep muscle massage(which you think you are going to die from)  I believe it helps because when you have daily pain you accommodate your body by sitting differently for example. Things you don't even know you are doing, but it can turn your whole body out of whack.
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krs
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posted on June 16, 2002 02:12:08 PM new
Just a sgt. mike redo.
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chococake
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posted on June 16, 2002 02:18:18 PM new
I ran out of room but I did want to add. Shut up stusi unless you've been there you have no idea what it's like. You can read or talk to as many doctors as you like about Fibro, but you have to feel it to know it!
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stusi
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posted on June 16, 2002 08:11:18 PM new
chococake- please don't misunderstand. I never said it was psychomatic. I said it was not necessarily a disease unto itself. The severe muscle pains are, in the opinion of many doctors, symptomatic of chronic fatigue. Perhaps you might want to go back and carefully read my posts.
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akt
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posted on June 16, 2002 08:24:29 PM new
Chronic fatigue?? If you call hurting all over, headache, hurting so bad that it make you sick at your stomach, all you want to do is lay down all day but feel bad about haveing to do that becouse your kids want to go somewhere, pain that runs through your bones, swelling in your arms and hands that it hurts to even turn a egg, I do know that this in not in my head and that something is Wrong! I am not crazy like some may think I honestly HURT. For those people who do not understand what this is the next time you hurt somewhere just think what if this pain never goes away ( then you just might have a very small idea what it is like to live the way people with fibro has to live)
For those of you that have posted helpful sites and info on meds Thank you.
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Helenjw
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posted on June 16, 2002 08:42:33 PM new
akt
I am sorry that you had to read the remarks made by the poster who calls himself stusi.
Cipher would be an appropriate name for this fool.
You will eventually get this problem under control with the appropriate medication. I hope that you will see a neurologist as soon as possible.
Best wishes , Helen
sp.ed.
[ edited by Helenjw on Jun 16, 2002 08:44 PM ]
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stusi
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posted on June 16, 2002 08:43:19 PM new
akt- Have you seen an immunologist?
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stusi
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posted on June 17, 2002 02:57:32 AM new
"Polymyositis is a chronic connective tissue disease characterized by painful inflammation and degeneration of the muscles." Standard treatment is Prednisone(which has many side effects). Gamma Globulin if Prednisone fails or is not tolerated.
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stusi
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posted on June 17, 2002 03:04:22 AM new
"Polymyositis is a chronic connective tissue disease characterized by painful inflammation and degeneration of the muscles." Standard treatment is Prednisone(which has many side effects). Gamma Globulin if Prednisone fails or is not tolerated.
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Linda_K
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posted on June 17, 2002 05:31:50 AM new
akt - Another online medical source is webmd.com.
There you can check on your diagnosed (??) illness and each of the medications you are presently taking...their benefits and drawbacks.
I've found it a very informative site. Hope it may provide some helpful information for your pain.
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auroranorth
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posted on June 17, 2002 09:46:11 PM new
Well how many would support legislation that said.
Medical release of inpatients
if an inpatient is being released and is in such a condition that if they simply went to the emergency room of the next closest hospitol and were ad mitted or the same hospitol and were re admitted then the officers associates doctors or personnel of any type responsible for this early release
cn be help in violation of the dsafety of this patient and fined a minimum of 5,000 per hour the patient is denied proper care.and or jailed 30 days minimum for each occurence.
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nycyn
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posted on June 18, 2002 08:51:45 PM new
Auroranorth--Not me. It's not that simple. Wish it was, but it ain't.
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auroranorth
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posted on June 18, 2002 09:00:10 PM new
you will agree that people are being released early wont you? if you do then you also have to agree that this has to stop.
I hear all this about the high cost of medical insurance.
first off Insurance companies do not have to have record profits every year.
the medical associations need to get off their asses and remove bad doctors get druggies and drunks help and clean up their act.
doctors do not have to make a million a year their second year.
lawyers do not have to have millions out of settlelemnts
The way the system is now is idiocy.
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nycyn
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posted on June 18, 2002 09:07:39 PM new
>>you will agree that people are being released early wont you? if you do then you also have to agree that this has to stop.<<
Yes and yes.
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kraftdinner
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posted on June 18, 2002 09:14:30 PM new
How do you stop greed?
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nycyn
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posted on June 18, 2002 09:26:37 PM new
>>How do you stop greed?<<
I think there should be treatment centers for it. I can't understand why multi-millioniares strive to be billioniares, and billioniares strive to be multi-billioniares.
Damn, they're so out of my comprehension I'm not sure I even spelled them right.
Hell, if they downgraded the kitchen cabinets in one of their dwellings they could set up someone like me, and other legitimately working deserving people, like my son and me, up for life.
So it goes, ey?
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kraftdinner
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posted on June 18, 2002 09:55:37 PM new
Yes, it could be like a Betty Ford Center, run by Ivana Trump and Tammy Faye Baker (owned by Bush). 
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akt
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posted on June 19, 2002 05:03:08 AM new
I went to the doctor again monday, he changed my meds and finally put on on some pain pills, one on the meds he put me on makes me sick and also it makes me have some crazy dreams, I stoped takeing once was enough and when I saw the side effects I was not sure.
It is called EFFEXOR XR has anyone here ever taken this? The pain meds are Lortab 5, also I was put on Celebrex. He wants to do some blood work and xrays but I have to have the cash up front they said it would be between 200-500 for the test.
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kraftdinner
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posted on June 19, 2002 04:03:50 PM new
That's great akt! Is the pain medication working for you?
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auroranorth
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posted on June 19, 2002 04:10:12 PM new
several here thought that effexor was bizarre
one girl said she dreamed in all mettalic colors others could not sleep.
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nycyn
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posted on June 19, 2002 04:36:59 PM new
Each person's response to a drug is different, akt, so asking us is irrelevant. The bottom line, after you take a new med *for a bit*, is how YOU feel. I know that meds that were horrific for me were a godsend for somebody else. That is how the med game goes. Did you find a fibromyalgia board yet?
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barbkeith
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posted on June 19, 2002 07:29:22 PM new
In 1969 my father (who had a roofing business) fell off of a roof and broke his back. After 4 surgeries and numerous other procedures he was in such chronic pain he was threatening suicide a lot. He went to Johns Hopkins in Baltimore about 3 years ago and they increased his morphine to 180mg per day. He takes 3 30mg pills twice a day. This is the only way he can deal with the pain. I have often wondered if his pain is real or imagined but it makes no difference to me. If morphine keeps him from suicide which would you choose? Barbara
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nycyn
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posted on June 19, 2002 07:35:46 PM new
Re Back Pain in general. There a Dr. Sarnow who has written at least one book on this. I have a friend who went to see him and swears by him--says his back only bothers him very occassionally now.
For what it's worth.
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stusi
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posted on June 19, 2002 07:52:51 PM new
Dr. John E. Sarno believes in TMS- Tension Myositis Syndrome. The theory involves a lack of oxygen to the troubled area and a link to psychological problems left over from one's childhood. Howard Stern swears by him, and he has also treated John Stossel and Anne Bancroft. Some consider him a quack and others praise him.
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hair2dye4
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posted on June 19, 2002 08:50:45 PM new
Ok I ignored a lot of the comments but I too was told I had it, turned out it was Lupus but not true with most, but the pain is bad I know, my mom has it an easy idea;
I made a list as I sat on ice, in terrible pain the list was;
what did I eat, how long did I sleep, how long I worked, how was the stress in my life 1-10, how much gardening did I do etc..put it out somewhere you always see, make it each day use scale 1-10 it's faster, then go back and see the pattern of the pain, for me Stress took 3 days then I was in so much pain, same with less sleep etc... this simple tool can tell you what your body is trying to say.
doctors are the best answer you have to find one that believes your pain. also hot tubs would be a great investment, I do water treatments,
fibro boards are great but try not to get to caught up in the negative you will feel better!!!! If you find a negative board move on!!!
Good luck to you all
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chococake
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posted on June 19, 2002 09:25:15 PM new
Lupus is often misdiagnosed as Fibro. It's important to to get tests to rule out Lupus and other illnesses so you can get the right medication. But, I know they're all expensive. What a sad situation that in the US that we can't get proper medical care, because of, lack of money and/or insurance.
I'm glad you got something for the pain. Has it helped? I don't know if you read the old threads that were linked here. I think in one of them I advised not to use ice. Ice increases the pain with Fibro. Use heat, from neck to feet if you can! I get wrapped up like a mummy in therapy, before we do anything.
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