akt
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posted on June 15, 2002 04:19:22 AM new
The doctor told me I have this a few years ago, I was doing pretty good until a few months ago and it started acting up big time, the meds that he put me on do not work, He has changed them a few times already the past 8 weeks still no relief. I am almost at the end of my rope with the pain.
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stusi
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posted on June 15, 2002 06:48:23 AM new
There is the possibility that there is no such thing. Before some doctor came up with this "diagnosis" what did people have? Muscle strain? Aching back? To many it is an entire industry that has been created. So many are sleep deprived, and since aching muscles are a symptom of sleep deprivation, isn't there a connection? Combine that with some physical exertion and you have the primary symptoms of Fibro. Try getting more sleep, no physical exertion and perhaps a good deep tissue massage. Chiropractic is also very good. Magnesium and calcium supplements can help.
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krs
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posted on June 15, 2002 07:27:13 AM new
akt,
I'd ask to see the certifications and or licenses possessed by stusi before I would rely on anything he says, not that I would even then.
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nycyn
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posted on June 15, 2002 07:32:37 AM new
Aw man, I did a response to this and it disappeared.
Short version:
1) Ask your physician to consider a standard pain management treatment: microdose of Ellavil.
2) Be sure you have a physician that knows what the hell she is doing. Usually a rheumatologist.
3) When acute I have found trigger point injections of Lidocaine helpful.
4) There are message boards/suport groups all over the Internet. I would look there for support.
All the best,
Cyn
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nycyn
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posted on June 15, 2002 07:36:23 AM new
krs: he/she (Stu and Susie) have no shortage of...let's say impulse.
People have killed themselves over "there's no such thing."
Shameless morons.
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hepburn101
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posted on June 15, 2002 07:57:56 AM new
akt, a friend of mine saw your thread and asked if I would please post the following links for you to check out:
http://www.fibrofriends.webga.com/
http://groups.yahoo.com/group/fibro_friends4fun/
http://www.fibrohugs.com/
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stusi
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posted on June 15, 2002 08:02:42 AM new
Just waiting on the last of the Three Musketeers to post- Helen where are you? It seems that every time I post the lockstep trio immediately follow. If form follows true, I would assume that they have nothing to contribute to the thread other than criticism of me.
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stockticker
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posted on June 15, 2002 08:17:10 AM new
AKT, here are three old threads where posters have discussed living with fibro. You are not alone. I hope these threads can help in some way:
http://www.auctionwatch.com/mesg/read.html?num=28&id=25412&thread=25379
http://www.auctionwatch.com/mesg/read.html?num=28&id=34708&thread=34630
http://www.auctionwatch.com/mesg/read.html?num=2&id=251195&thread=250803
Irene
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nycyn
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posted on June 15, 2002 09:04:35 AM new
>>Just waiting on the last of the Three Musketeers to post- Helen where are you? It seems that every time I post the lockstep trio immediately follow.<<
stusi won't consider that we are actually responding to the initial poster. stusi thinks all posts are about himher.
stusi continues to post about himherself out of context yet.
i put stusi on ignore but it didn't work apparently. it's a good thing in this case tho'.
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Helenjw
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posted on June 15, 2002 09:05:44 AM new
stusi
Well hot dam! We must be off ignore. So, now you are recommending vitamins and witch doctors to alleviate chronic pain?
akt
Since your present doctor is unsuccessful, I would suggest finding a center that deals only in this type of disease and in the management of chronic pain. A good neurologist might be a helpful starting point.
Good luck!
Helen
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antiquary
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posted on June 15, 2002 09:10:38 AM new
If you use nutrasweet, or products that contain much nutrasweet, such as artifically sweetened soft drinks, you might try cutting them from the diet for a couple of weeks and see if that makes a difference. It's removal had a considerable effect on improving or overcoming my personal health problems and those of at least a dozen other RL friends and acquaintances. There's a good deal of information on the internet about the effects of nutrasweet that I would encourage anyone who uses it to read.
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nycyn
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posted on June 15, 2002 09:13:15 AM new
<<Well hot dam! We must be off ignore.>>
No it's either funnier or sicker than that. Heshe saw that krs and I *posted* and concluded the posts had nothing to offer but to criticize himher most likely.
We should all put himher on ignore but then who would protect the unwitting?
"Hello. I am suffering and in pain, can anybody help?"
Stusi:"There is the possibility that there is no such thing. Before some doctor came up with this "diagnosis" what did people have? Muscle strain? Aching back? To many it is an entire industry that has been created."
I hope akt came back after MrMs. Sensitive Helpers got there.
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kraftdinner
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posted on June 15, 2002 09:50:40 AM new
Although radical to some, if you can find a Compassion Club in your area, marijuanna is an excellent pain reliever for chronic pain sufferers. If you're opposed to smoking it, you can bake it and still get relief. I'm not sure about U.S. laws, but if you're in Canada, you can apply to grow/smoke it legally.
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Helenjw
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posted on June 15, 2002 11:38:48 AM new
Getting stoned on pot may be a short term solution, but this is a chronic disease and a long term solution is needed. Unrelenting pain will probably not be relieved by something as trifling as pot.
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kraftdinner
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posted on June 15, 2002 11:52:38 AM new
There's no cure Helen, so in the meantime, many people that can't tolerate heavy pain killers have resorted to taking pot. Pot works well for MS sufferers, cancer patients, eating disorders...the list is endless.
It's time people quit sterotyping marijuanna. It needs to be offered legally to medical patients. It's a crime to NOT offer it to people that are suffering.
Please read up on it Helen. You might be surprised at what you find out.
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nycyn
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posted on June 15, 2002 12:08:01 PM new
"Weed" is considered a legitimate painkiller. However "fibro" need not be so debilitating if well-managed.
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Helenjw
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posted on June 15, 2002 12:13:26 PM new
The CRIME, Kraftdinner is that patients with unrelenting pain are left with nothing but marijuanna to manage it. Give me a blanking break!!!
Why should a sick patient be forced to go downtown to the "corner" to buy illegal drugs to handle pain.
That's a DISGRACE.
Helen
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Helenjw
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posted on June 15, 2002 12:22:35 PM new
I read the threads that Irene posted for example about people who were struggling day and night with pain.
There is no excuse for such medical incompetence and lack of compassion by those who call themselves doctors.
My mother in law has been in pain for the last 10 years and no doctor has suggested that she eat brownies laced with pot.
She get's nothing.
Helen
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kraftdinner
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posted on June 15, 2002 12:36:59 PM new
Exactly Helen & nycyn. It is a crime that this medication isn't offered readily. There is still a stigma attached to marijuanna. In some states, it's legal to possess it for medical purposes with a doctor's approval, but most doctor's are either ignorant of it's benifits, or are afraid of any legal ramifications. That's why there are Compassion Clubs. They will give or sell you, for a small amount, medical grade pot but you must provide proof that you are under a doctor's care.
When a person is living with chronic pain, I believe anything should be tried to help that person. The side effects are minute compared to heavy drugs Helen.
I've yet to understand what the big deal is about this plant. It's medicinal effects have been known about and used for centuries. Why should people have to suffer if there's a possible option?
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Helenjw
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posted on June 15, 2002 12:39:44 PM new
"Please read up on it Helen. You might be surprised at what you find out"
I have researched the problem, Kraftdinner.
I was not pleasantly surprised with what I found out about pain management. Why are you?
Helen
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doxdogy
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posted on June 15, 2002 12:54:03 PM new
Akt
I suffer from chronic back and neck pain. So, I know the frustration that you feel. I am not to familiar with fibro. But, the doctor put me on naproxen and it seems to do the trick for me. Not sure if an anti-inflammatory would help you.
Theresa
[ edited by doxdogy on Jun 15, 2002 12:58 PM ]
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Helenjw
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posted on June 15, 2002 12:58:45 PM new
Kraftdinner,
I think that you misunderstand my position about pot. It should be legal. I agree with that.
My focus is on the incompetence of the medical community. Is it asking too much to think that they should be able to prescribe medication to relieve pain?
The poster who started this thread said, "I am almost at the end of my rope with the pain." That statement along with the stories on the threads that Irene posted is evidence that doctors are failing to take care of their patients.
The medical professionals should be ashamed.
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kraftdinner
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posted on June 15, 2002 12:59:49 PM new
I know what you're saying Helen. I can see that you are suffering just as much as you MIL, seeing her go through this.
In this day & age, we (society) should have some effective pain relievers that are safe to take, but we don't.
My dad had pancreatic cancer. He was given morphine pills for pain, but they didn't help much. Someone suggested pot. He was afraid to try it because it's illegal, but the big bottle of morphine pills weren't. It didn't make sense to me.
It still doesn't. 
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krs
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posted on June 15, 2002 01:59:36 PM new
If anyone is seeing a medico who won't prescribe narcotics they should see another doctor. There are attitudinal influences which affect a given physician's willingness ro treat.
There are several compounds that are quite effective without being heavily addictive. Also there are multipurpose things which, while originally not for the purpose, have been found to be successful in pain management as well. A good example of the former is hydromorphone, and of the latter - nortriptyline. Both are more effective than oral uses of Morphine Sulfate.
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stusi
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posted on June 15, 2002 02:59:51 PM new
Fibromyalgia has become a catchall for a variety of ailments. It has also become a favorite amongst the hypochondriacs who tend to attach themselves to the "latest" diseases and syndromes. This is NOT to say that there is no such thing as muscular pain. But being around many people who claim to have this condition has lead me to believe that very few actually have anything more than muscle pains. When I was running two national medical advisory boards I asked many doctors about this. Many I spoke to on a daily basis had serious doubts as to the Fibro syndrome. Deep tissue massage and/or Chiropractic has amazingly "cured" many supposed Fibro sufferers. AKT- you should not rush to take any more prescription medications as they have serious and numerous side effects. Perhaps seeing a DO or DC would be informative since you are not having any luck with MD's. Good luck!
[ edited by stusi on Jun 15, 2002 03:06 PM ]
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akt
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posted on June 15, 2002 03:10:29 PM new
Thank you to everyone who has replied, I am just about to the point of giving up. I am on 6 different meds now, I get light relief but still hurt all the time, the doctor told me to stay away from stressful situations, how can you do that? I have a husband 4 kids and try to sell on ebay. here is a list of the meds that I am on now and they are not working
Zanaflex
Trazodone
Celexa
Skelaxin
Vioxx
Niaspan
I have to take the muscle relaxers becouse I have bad muscle cramps across my rib cage, and before I was put on these the cramps were so bad that I cracked a couple of ribs, they do not know if the muscle cramps are from the fibro or something else.
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nycyn
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posted on June 15, 2002 04:15:32 PM new
akt: First, I hope you are ignoring the village idiot. Log in. Click on the ID then on "ignore this member". It works inconsistently, but try. He/she will drive you to spasm.
>>The medical professionals should be ashamed.<<
Helen: or the HMO's, or both.
A number of years ago I had an impulse to step in front of an oncoming subway train. The reason for this was because I was in chronic focking pain x 2 years (!!!) and the doctor's couldn't "find anything." By now I had been to maybe 8--General/Orthopaedists/TMJ clinics. The chiropractor was useless in this case. Obviously I was crazy. But wait:
It usually went like this. I'd call a doctor, speak to him personally. He'd then go into a pep-talk about how it could be TMJ, or this, or that, etc. etc., giving me hope and feeling like someone cared.
I'd show up at the "participating provider's", get yet another x-ray of my neck and shoulders, then be told "There's nothing I can do for you", or "I don't see anything." The same guys who spent 10 minutes with me on the phone spent 30-60 seconds with me in their office.
This happened enough times that I thought the obvious was that I was mad.
After the subway thing I accepted a referral to and I wound up going to a "private" rheumotologist, with whom I credit with saving my life. In one visit.
Some time later I got one of those look-what-we-paid-on-your-behalf type letters from my medical insurance company. "Initial" visits were reimbursed at around $150.00 +, while 2nd visits got around $30.00 (needless to say I had like one of those--2nd visits...)
Also akt, I did spend a year in 3x weekly physical therapy.
Don't quit before the miracle!
[ edited by nycyn on Jun 15, 2002 04:27 PM ]
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akt
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posted on June 15, 2002 04:55:29 PM new
Thanks! I wish my miracle would come soon!!
I have thought about the train idea also, but what stops me is my kids!
It is so hard to deal with the pain, it is hard to explain to anyone how it really feels, like when your arms hurt so bad that you feel like they are being pushed against your chest and they you are just going to pop, I know that may sound crazy to some but that is just about how it feels, or you have pain inside your bones that nothing stops the pain from it, you cannot think straight and all you want to do is stay in bed. People tell you to deal with it or manage the pain, How do you do that?
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doxdogy
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posted on June 15, 2002 05:02:03 PM new
Don't give up. Also, could you please e-mail me privately?
Theresa
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Helenjw
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posted on June 15, 2002 05:09:25 PM new
stusi
"When I was running two national medical advisory boards I asked many doctors about this."
Does this indicate that you have a MD and possibly a PhD also, along with your other certifed conditions that we have mentioned previously?
Helen
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